Ryry 14 months

Ryder at 14 months:
*yes, still in size 4 diapers
*still in mostly 12 month clothes with a few 18 month
*walking!
*is taking about 32 ounces of Elecare Jr formula from a bottle
*eats a variety of fruits and veggies, puffs, Cheerios, pasta, graham crackers, Ritz crackers
*laughs and smiles a lot when he is feeling good
*sleeps 1 5-6 hour stretch each night, still waking up every 2 hours some nights
*still very ticklish!
*7 teeth!
*weight 22 lb 4 oz
*height still 30.5 inches

We have some great visitors this week!  Jay's family is visiting.  While it is a lot of prople in our house its so good to have my girls here!!

Children's Hospital Boston @ Waltham a diagnosis

We finally got in to see the Doctor at Boston Children's Hospital.  We saw Dr Gno.  Things went well.  We went over his history and various other Dr appointments and test results.  Basically it is a
confirmed that is is FPIES.  There is no definitive test for it and really no treatment.  The plan for right now is to continue with Elecare Jr and avoid the foods we know have made him sick and slowly introduce new foods.  They also took a bunch of blood for allergy testing not that we expect any of that to show anything.  The Phlebotomist did an amazing job and only had to stick him once and that has never happened!  We will follow up with the local GI in a few weeks and come back here the end of August.

Also he will be getting Tubes in his ears next week!

Ryry 13 months

Ryder at 13 months:
 *still in size 4 diapers
*still in mostly 12 month clothes with a few 18 month
*still cruising and will occasionally stand on his own
*pulling himself up to standing on everything
*is taking about 24 ounces of Elecare Jr formula from a bottle
*eats a variety of fruits and veggies, puffs, Cheerios, pasta, graham crackers, Ritz crackers
*laughs and smiles a lot when he is feeling good
*sleeps 1 5-6 hour stretch each night, still waking up every 2 hours some nights
*still very ticklish!
*6 teeth!
*weight 20 lb 4 oz
*height still 30 inches

WW My heart.....

This is most of my heart right here....

Doctors, doctors and ugh....

This week was crazy busy with Doctor's appointments, mostly for Ryder.

Monday was Ryder's 1 year check up and Noah's 7 year check up.
At his seven year check up (on 04/22/13) Noah's stats were as followed: BP: 96/68
Height: 3' 10.61
Weight: 45 lb 9.6 oz

So although he's a bit on the small side he is healthy.  Everyone at school loves him and talk about how well behaved he is and how he is polite and courteous.  He loves his video games.  He is starting to read more and ore and really likes it!

Ryder at 1 year:

*still in size 4 diapers
*still in mostly 12 month clothes with a few 18 month
*started cruising and will occasionally stand on his own
*pulling himself up to standing on everything
*is taking about  24 ounces of Elecare Jr formula from a bottle
*eats a variety of fruits and veggies, puffs, Cheerios, pasta, graham crackers, Ritz crackers
*laughs and smiles a lot when he is feeling good

*sleeps 1 5-6 hour stretch each night, still waking up every 2 hours some nights

*still very ticklish!
* 5 teeth!
*weight 19 lb 10.5 oz
*still height 30 inches
*head 18.3 inches

So we have decided the best coarse of action at this point is to see someone at Children's Hospital Boston.  His PCP put in a referral to get the ball rolling.

Tuesday Ryder had an appointment with Allergy for a second opinion.  The doctor and I went over his history and he feels that if it is a food allergy it is a non IG-e mediated reaction (more on that later).  The doctor did order some blood work to rule out the possibility of an auto immune deficiency, and agreed CH-B was the place to go.  After the appointment we went to the lab where they tried 3 separate time to draw blood with no success.  We had to try a different lab Wednesday Morning.

ETA: those tests came back normal

Wednesday Ryder had an appointment with ENT to discuss his recurrent ear infections especially since the last on resulted in a ruptured ear drum.  So long story short Ryder will be getting tubes:(  We came to this decision for multiple reasons.  When Ryder gets an ear infection he doesn't have the usual symptoms, anti biotic wreck havoc on his already  sick digestive tract and if he does get an infect with tubes we can use antibiotic drops directly into the ear instead of oral or IM anti biotic.

The Big Bash!

For Ryry's Birthday we I chose a Dr Seuss theme. 

His amazing shirt made by Nonnie

Cake 1, it was  Hypoallergenic and made just for Ryder!

Cake #2 the real cake for real people:)

MMMM....cake!

After chowing on cake....Coconut oil melts at body temperature apparently...he is covered in greasy melted frosting!

Hanging with Popsie after a bath

Partied too hard!

Happy Birthday Baby Boy!!!

I spent a lot of time on pinterest finding food ideas that were Dr. Seussish:)  So the menu looked a little like this:

Noodle eating Poodles- Homemade Mac & Cheese
One Fish Two Fish- Blue Jello cups with Swedish fish
Hop on Pop (corn)- Smart Food
Cat in the Hat- Strawberry Banana Skewers
Green Eggs- Green Deviled Eggs
Yot in a Pot- Meatballs and Kielbasa in the crock pot
Skipper Zip's Chips- Chips and dip


The cake my sister made was supposed to be hypoallergenic.  It was gluten free, egg free, dairy free, soy free with dairy free frosting made with coconut oil.  Unfortunately, it seems coconut is also a food that triggers Ryder's "episodes".  I feel bad my sister put in so much work making a special cake just for him, researching, price checking and everything and it made him sick anyway:(  Your effort was greatly appreciated even so!

OMG 1 year!!!

*yep...still in size 4 diapers
*and...still in all 12 month clothes 
*pulling himself up to standing on everything
*is taking about  20 ounces of Elecare Jr formula from a bottle
*eats a variety of fruits and veggies, puffs, Cheerios, pasta, graham crackers, Ritz crackers
*laughs and smiles a lot

*sleeps 1 5-6 hour stretch each night, still waking up every 2 hours some nights

*still very ticklish!
* still 4 teeth!

His party is later today so hopefully we will have some pictures then.  His VNA will check his weight on Monday and the week of 4/26 he sees both new specialists.